Are you here to GET TESTED?
Quest to Cure Foundation is a small parent led community organization with big aspirations. Our goal is to… Wait for it…. Eradicate heritable diseases. The average person does not think about “heritable diseases,” until their child is diagnosed with a disease such as Cystic Fibrosis, Sickle Cell Disease or Muscular dystrophy which are disease that are “inherited” from their parents.
I’m sure you already know this, but a genetic disease is any disease caused by an abnormality in the genetic makeup of an individual. Some people inherit genetic disorders from their parents, while acquired changes or mutations in a preexisting gene or group of genes cause other genetic diseases. Quest to Cure’s goal is to eradicate those genetic diseases that are passed down from parents, because with education and awareness those types of disease can be prevented.
DON'T GIVE YOUR CHILD A LIFE SENTENCE
Not knowing if you are a carrier of an abnormal heritable gene that could be passed down to your child is like unknowingly giving your child a life sentence for something they didn’t do. And in some cases, a death sentence.
Because my husband and I didn’t know that we were carriers of an abnormal gene that caused Sickle Cell Disease, our twin sons Joshua and Jordan sat on “Death Row” for 16 years. Had the education and awareness being offered to you today been available to me, I would have made a more informed decision about having children. The pain my twins endured at times were unbearable. And the guilt I carried, I would not wish on my worst enemy.
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YOUR CHILD CAN BE THE TEST SUBJECT... OR...
I wanted so badly for my twins to be cured of their disease. The disease that apparently was inherited from me and my husband.
When my twins were young, I signed them up to participate in clinical trials to help find a cure for sickle cell disease in Arizona. I was desperate. While the trials made it into the main stream and is now part of the treatment for sickle cell disease, I felt awful to have put them through such uncertainty. I kept thinking to myself, “My children are test subjects.”
Get the Most Useful Test
ASK QUESTIONS
Talk to your doctor about getting tested. Ask to have the test that gives you the most detailed results. Avoid tests that only give a “positive” or “negative” result. “Electrophoresis” and “DNA Analysis” give detailed results. “Electrophoresis” is pronounced (ee-lek tro-for-ee-sis)
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