Dedicated to Being the Voice Heard all Around the World
Being
the preeminent
voice for change
Quest to Cures’ focus is to eradicate sickle cell disease and other genetic blood disorders that cause chronic pain.
Chronic pain not only affects one’s physical abilities, but negatively impacts a person’s quality of life. A person suffering from chronic pain due to genetics is a heart-wrenching site and could be preventable with education, fair reliable medical treatment, and realistic access to continuation of care.
A 501(c) 3
Back at it again...
Quest To Cure Sickle Cell Foundation is based in Phoenix, AZ and is a non-profit 501(c) 3 organization purposed to help individuals with Sickle Cell and other genetic blood disorders to focus more on life in the face of pain and disability.
Our cause is not limited to a particular region, as heritable diseases can affect anyone, and does not limit itself to a particular region. Genetics knows no boundaries. Due to the lack of education and awareness, heritable diseases are affecting individuals and families from various ethnic, economic, and geographical backgrounds. With that said, Quest to Cures purpose is ongoing, and our need is ever present. As long as babies continue to be born with sickle cell disease, sickle cell trait, and other heritable diseases, there will be a need for our services. Until our quest to find a cure is fulfilled, we will continue to serve.
We hope that you will join us in our quest.
Our New Mission
In 2012 Quest to Cure closed their doors due to the founder’s twin sons being recipients of Bone Marrow Transplant. Although Quest to Cure's doors were closed, the founder Kristine Buchanan remained as the go to person for community outreach and received more than ten calls a month from hospitals, individuals with sickle cell disease and community organizations requiring her competence of the sickle cell community.
It was clear that even in Quest to Cure's absence, their continuous presence provided much needed services to those battling sickle cell disease and other genetic disorders. Kristine was then convinced to reopen Quest to Cure's doors even if it meant using her own personal funds because a community in crisis is a community that needs championing. However, Quest to Cures success and sustainability cannot be contingent upon Kristine’s meager salary. As well, in the current financial environment, there is no room for small parent led organizations due to the competitiveness for financial support for nonprofit organizations. In fact, there seems to be no room to expand or give individuals much needed help even though Quest to Cure has the expertise and the call to do so from the individuals we serve. Your support is needed.
What We Do
Education & Prevention
Providing public education & preventing genetic disorders from being passed on to newborns.
Health & Healing
Inspiring healthy habits such as pain coping and healthy eating.
Youth Transition
Where patients with genetic blood disorders transition from child-focused medical care to the adult care system.
Access to Care
A medical home focused on resources, referral and advocacy to those effected by genetic blood disorders.
Joshua & Jordan's Bone Marrow transplant Journey
250
Over 250 blood tranfusions
between them before Bone Marrow Transplant
Joshua and Jordan are identical twins who were born with Sickle Cell Disease. When they were told by their Hematologist at Phoenix Children’s Hospital that they qualified for the Bone Marrow Transplant (BMT) Program due to their severe sickle cell disease, the news was met with skepticism. The idea of not having to live with sickle cell disease seemed unconceivable.
Joshua and Jordan suffered from numerous pain crisis and multiple episodes of acute chest syndrome. They were hospitalized on average 4-5 times a year with an average stay of 5 days per hospitalization. All they had ever known was pain and all the effects of sickle cell disease. Now they were being told that there was a cure? To follow Joshua and Jordans Journey, go to our blog.